Real Answers to the 20 Most Common Questions Amputees Ask
I recently came across an article by Ortheco USA titled “20 Common Questions by Amputees”. It offered clear, practical answers for people adjusting to limb loss. As someone who’s lived this experience, I wanted to share my own perspective on each question — not to disagree, but to expand on what life as an amputee actually looks and feels like.
Below you’ll find each original question, a summary of Ortheco’s answer, and then my own take based on years of experience and connection within the amputee community.
1. Will I experience phantom limb pain?
Ortheco’s answer:
Many amputees experience phantom sensations — tingling, burning, or aching — where the limb once was. Treatments like medication and physical therapy can help manage them.
My take:
I have never experienced phantom pain or phantom sensations. I do not really remember life with a real leg and i have a feeling that plays a part in this. I am Very fortunate to not experience this as anywhere from 50-80% of amputees are reported to experience this.
2. How soon after surgery can I be fitted with a prosthesis?
Ortheco’s answer:
It depends on individual healing. Once the surgical site heals and swelling reduces, fitting typically begins within a few weeks to a few months.
My take:
I got my leg amputated in the 90s. I was a patient at Shriner’s Hospital for children and so they did the amputation surgery, my rehab and fitted me for a prosthetic all while i was an inpatient there! Amputation surgery is a lot different now in that you don’t “live” at a hospital afterwards. Most times you surgery, rehab and fittings are all done in separate locations where those specialists reside.
3. Is the prosthetic fitting process painful?
Ortheco’s answer:
The fitting shouldn’t hurt, though it might feel strange or uncomfortable at first. Communication with your prosthetist ensures the best fit.
My take:
The fitting process is not painful. If you have ever broken a bone you are actually casted for your socket! They then make the socket based on your mold. I have been fitted countless times since i was 4 years old and have also fit many patients in my years as a prosthetic technician!
4. How long will my prosthetic limb last?
Ortheco’s answer:
The lifespan varies by usage, activity level, and limb changes. Regular prosthetist checkups help determine when replacements are needed.
My take:
Their answer is so true! it really just depends on the individual. I was an amputee as a child so I was really rough on them and i was still growing! Now I am done growing, but still rough on them. I will say this though: as soon as you are due for parts (liners, socks, foot, etc) and insurance is covering the majority of the cost - GET YOUR GOODS! For me i am due for new liners every 6 months and that is according to my health insurance. So you better believe at 5.5 months i’m calling up my prosthetist ordering those liners!
5. Can I lead an active lifestyle with a prosthetic limb?
Ortheco’s answer:
Absolutely. Many amputees participate in sports and physical activities. Your prosthetist can design a limb suited to your goals.
My take:
I want to be clear on this: Yes, but you don’t have to! Some people were not runners before they became an amputee and they see all these images of blade runners and feel like they have to be a paralympic athlete. You can absolutely be active, but what you should be concerned about is doing what you want to do! I had a patient who said he really really hoped he could keep up with his grandkids. He wanted to be able to walk with them and feel independent enough to babysit them. THAT is an amazing goal and absolutely doable! I have hiked all over the world, i have water & snow skiid, i played on my high school’s basketball team and swam on the Varsity swim team. I have rock climbed and mountain biked! I took ballet for 9 years and have tried everything i have ever wanted to try! I’m not great at most of those things but i have really enjoyed trying them all!
6. Will my insurance cover the cost of a prosthesis?
Ortheco’s answer:
Most U.S. insurance plans cover prosthetics to some extent, but details vary. Review your policy and coordinate with your prosthetist and provider.
My take:
My husband’s insurance covers more than mine did so once we got married i switched to his! My insurance covers the majority of my costs and keep my out of pocket below $5,000. These limbs are not cheap and being told what you can and cannot have by someone punching numbers is really frustrating. THE most important thing you can do is know your rights as an insured amputee.
7. How do I care for my residual limb?
Ortheco’s answer:
Wash daily with mild soap and water, inspect for skin issues, and follow medical advice to maintain skin integrity.
My take:
I cannot stress how important this is! I’d even go as far to say it’s more important than washing your face! This skin can be so sensitive and if you have a skin issue it can keep you out of your prosthetic for weeks at a time!
8. What is a stump shrinker, and do I need one?
Ortheco’s answer:
A stump shrinker is a compression garment that reduces swelling and shapes the limb for a better prosthetic fit. Your medical team will guide you on use.
My take:
These are typically used in the first few years post amputation. I don’t remember using one but i was so young that i’m sure that was a problem for my parents to figure out. However, i have actually begun using one again in the last couple years. I took an international trip and wore it on the plane so i didn’t have to wear my prosthesis on a 14 hour flight. It prevented my leg from swelling due to altitude/cabin pressure. I also will wear one at night after being active. These little amputated limbs take a beating and will fluctuate in size. Feeling certain i’ll be able to fit into my leg the next day is a big relief.
9. Can I drive after an amputation?
Ortheco’s answer:
Yes. Many amputees return to driving with or without vehicle modifications. A driving rehab specialist can ensure safety and comfort.
My take:
I had a roller coaster of an experience with driving and have lots of feelings around this topic haha.
10. How do I manage phantom limb sensations?
Ortheco’s answer:
Options include mirror therapy, medications, acupuncture, and other techniques. Work with your provider to find the right combination.
My take:
I have read a lot about phantom pain & sensations. I have been an amputee for 30 years, worked in Prosthetic Design and Research, and even worked as a Prosthetic Technician (building prosthetics), but i have never experience these myself and do not want to give any advice because of that. Feels sort of like when people tell us they broke a toe once so they know what it feels like to be an amputee…
11. Will I need physical therapy?
Ortheco’s answer:
Yes, physical therapy is essential for strength, balance, and learning how to use your prosthesis effectively.
My take:
Physical therapy is absolutely essential! But beyond that, I believe functional strength training is key to maintaining progress long-term. I always say I work out so that I can keep doing the things I love. As amputees, we use significantly more energy just to get through everyday activities compared to non-amputees—so building strength really pays off.
I’ve created a Functional Strength playlist on our YouTube channel to help you get started—check it out
12. Can I sleep with my prosthetic limb on?
Ortheco’s answer:
It’s best to remove your prosthesis before bed to allow your skin to breathe and prevent pressure sores.
My take:
I did this once as a kid at a sleepover. I was too embarrassed to take my leg off. I couldn’t walk the next morning my leg hurt SO bad. That was the one and ONLY time i did it. I do not recommend ever trying it for yourself!
13. How often should I see my prosthetist?
Ortheco’s answer:
Frequent appointments are important early on, then about every six months or as needed for adjustments.
My take:
I think this varies person to person. I have reminders set for when i’m due for parts because i don’t want to miss insurance covering something. I then just call in whenever i need a little tuneup or something. I used to not want to “bother” the clinic but now I call/text about all sorts of questions and you know what? I have the most comfortable leg i’ve ever had!
14. What should I do if my prosthesis causes discomfort?
Ortheco’s answer:
Contact your prosthetist right away. Discomfort can signal a poor fit or needed adjustment.
My take:
SPEAK UP!!! No one knows your body better than you. I have a horror story of when i stayed silent and it nearly led to a higher level amputation for me.
15. Are there support groups for amputees?
Ortheco’s answer:
Yes. Organizations like the Amputee Coalition offer community support, events, and shared resources.
My take:
There are SO many support groups! I have a few resources linked here, but a really great way to browse without having to be face-to-face is to check out facebook groups, reddit threads, and blogs like this one!
16. Can I shower with my prosthetic limb?
Ortheco’s answer:
Most prosthetic limbs aren’t waterproof. Remove them before showering unless specifically designed for water use.
My take:
I have always just done a balancing act because i have been an amputee my whole life and as a kid i wasn’t worried about falling. I still do this, but have installed grab bars in my bathroom now “just in case”. If your prosthetic is waterproof feel free to wear it, but ensure you are still cleaning that residual limb!
17. How do I prevent skin irritation from my prosthesis?
Ortheco’s answer:
Keep clean, use liners or socks correctly, and have regular fittings to prevent friction and pressure points.
My take:
Skin care is going to be a major player here! Also, resting is important! I have had to take my leg off mid hike, bike ride, or run in order to dry off the sweat! Becoming comfortable doing what You need to do is key!
18. Will I gain or lose weight after amputation?
Ortheco’s answer:
Weight fluctuations are common. A balanced diet and approved exercise help maintain stability.
My take:
Again, as a 4 year old this was not a major concern for me. My parents were actively trying to get me to gain weight because i was malnourished from being in an orphanage. Also as you grow…you inevitable gain weight. To touch on the opposite end of the spectrum i got really sick in college (was in a coma) and lost a lot of weight! When i woke up my leg was way too big. Less dramatic things happen though and your weight will fluctuate as well as your residual limb can change shape. Functional strength, skin care and wearing a stump shrinker are all things You can control!
19. Can I travel with my prosthesis?
Ortheco’s answer:
Yes, with preparation. Notify airlines, prepare for security screenings, and carry spare supplies or parts if possible.
My take:
I just took an international trip this year and it was amazing!!
20. How do I cope emotionally with limb loss?
Ortheco’s answer:
Emotional challenges are normal. Support groups, therapy, and connecting with other amputees can help.
My take:
This one is tough to answer because i was a toddler and just wanted to keep up with the other kids. But growing up as an amputee was full of emotional challenges from middle school bullies, to high school insecurities and dating life oof! I have had a roller coaster of emotions with this experience. The best piece of advice i can give is this: once i worked on my self-confidence things really changed for me. People noticed and I became “popular”, i got asked out on dates, and i just felt so much better about myself! It took nearly 20 years for me to get there and i went through lots of ups and downs.
Every amputee’s experience is so different, and that’s what makes our community powerful. If you have questions that weren’t covered here, or your own take on one of these 20, share it below. The more we talk about it, the more we all learn.
